About MyThalassaemia
MyThalassaemia is one of our computerised diseases registries. We also develop other diseases registries such as the Haemophilia registy. We are actively providing software solution since 2003 and are particularly active in the United Kingdom and Malaysia.
Our Strength
MyThalassaemia is a user friendly system that has been developed over several years. Some of the strengths are
- A comprehensive registry that hold patients diagnosis and treatment records
- In use by the Ministry of Health Malaysia since 2007
- Extensive reporting for management, planning and research purposes
- Constantly being updated with new features
There is no other thalassaemia registry in the world that can match MyThalassaemia or come close to it.
MyTalasemia
MyTalasemia is our version for the Malaysian Ministry of Health and it is the largest thalassaemia registry in the world.
Patients Large set of patients' records from birth
Hospitals Used by participating government and university hospitals
States Reports can be produced based on center, state or national
Years Data collected since 2007
Reports
MyThalassaemia has numerous reports on patients, centres, states as well as national. Reports can also be produced for any specified year. Sample reports below are based on test data to show what the system is capable of reporting.
Ferritin Level
Patient serum ferriten trend
Height chart
Height against growth curve
Weight Chart
Weight against growth curve
Survival Analysis
Kaplan Meier Survival Analysis
Diagnosis
Breakdown by diagnosis
Chelation
Breakdown by chelation
Ethnic
Breakdown by ethnic
Patients
Breakdown by age groupThalassaemia in Malaysia
Status of thalassaemia in Malaysia published in BMJ with data extracted from our system.
